Donald Newhouse honored for work targeting primary progressive aphasia, all forms of dementia most commonly under 60

New York And the April 1, 2022 /PRNewswire/ – Wednesday evening, at the Ziegfeld Ballroom in New York CityHonoring the Association for Frontotemporal Degeneration (AFTD) Donald Newhouse In 2022 Hope Rising Benefit.

Donald lost his wife, Susan Marley Newhouseto primary progressive aphasia in 2015. One of the most common forms of false dementia in people under the age of 60, primary progressive aphasia is often characterized by the gradual loss of the ability to speak, read, write, and understand what others are saying.

Through what he called “the whim of fate,” Donald also lost his brother C. Newhouse (which he co-owned with Donald of Advance Publications) to a different form of the same disease in 2017.

AFTD honored Mr. Neuhaus – a member of the organization’s board of directors – for his leadership and contributions to a deeply personal cause: delivering a world with compassionate care, effective support, and a future free from progressive primary aphasia and all forms of FTD.

First benefit since 2019
Over 375 people attended the 2022 Hope Rising Benefit Conference, the first in-person Hope Rising Benefit event since 2019. The event attracted more than $2,150,000 To support the mission of the AFTD, the highest amount raised since the appropriations began in 2016.

Paula ZangEmmy Award-winning journalist, executive producer, and host of Investigation Discovery’s on the case with Paula Zanghosted the event for the fifth year. Vogue magazine Editor in Chief Anna Wintour and CEO of Discovery Inc. David Zaslav Utility chairs served.

Mr. Zaslav and AFTD CEO, Susan L. J. Dickinson, presented Mr. Newhouse with the Susan Newhouse and Si Newhouse Award for Hope, in recognition of his continued work as an advocate, volunteer and donor in support of AFTD’s mission.

From hope to action
“I am honored this evening that we have not been able to bring every family affected by FTD to this point,” Mr. Newhouse said during his acceptance speech. “I am asking you to use your imagination to see the over 60,000 families and many others from around the world congregated on this platform, each with their own unique story but united by the agonizing journey they collectively endured.”

“As you heard tonight, AFTD funds research and efforts to increase awareness of FTD,” he added. “AFTD turns patients’ hopes into action”.

Tony Award-winning singer and actress Jesse Muller He entertained the evening and gave a special presentation of the “If You Knew Susie” criterion, dedicated to Mr. Newhouse’s late wife.

Susan LG Dickinson, CEO of AFTD, added: “I know Donald Newhouse As an AFTD Board Member, Volunteer, Donor, and Friend. I know him as one of the many thousands in our community who are taking action to try to make this world a better place for anyone facing FTD. And I know him as a unique force, who brings tremendous dedication, insight, and one-minded perseverance to really move the needle for families facing this disease.”

Other speakers at the event include AFTD Board Member Beth Walter, who delivered the keynote, and Vice President of Benefit Cathy Newhouse Milliethe daughter of Mr. Neuhaus and is herself a board member of AFTD.

New York State Senator Michelle Hinchey described the effect high hope In a video that was played during the event.

“The struggle against FTD is a personal battle for me, as my father passed away in 2017 after suffering primary progressive aphasia,” Senator Henchy said. “To family members and those with first-hand experience fighting this difficult disease, know that my heart is with you. To those who are allies in our fight, thank you for your help in raising awareness among your communities even after tonight and for your generosity in helping fund the research that will lead us to a cure.” “.

The event included a special video produced by Discovery, Inc. , presents Mr. Newhouse’s story and in honor of his work with AFTD to end primary progressive aphasia, FTD behavioral variables, FTD-ALS, and all forms of this disease.

About frontotemporal atrophy (FTD) and AFTD
There are currently no approved disease-modifying therapies for FTD, which affects more than 60,000 people in United State And today is always a killer.

The Association for Frontotemporal Degeneration (AFTD) is a leading nonprofit organization dedicated to helping families affected by FTD today, and leading research to advance accurate diagnosis, treatments, and treatment. Our volunteer-founded organization – led by thousands of volunteers and donors – reflects the community’s determination to #endFTD.

coverage
Vogue magazine: Donald Newhouse Honored at 2022 Hope Rising Benefit

Approved images for the feature can be viewed through this link: https://www.dropbox.com/sh/wb8ukzb8mlcb0pu/AABi25_bN8UA2MTB3bGzFqlJa?

Al-Masdar Association for Frontotemporal Atrophy

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